They never listen, they just never fucking listen
Posted: Thu Aug 18, 2011 3:44 am
Recently had a sleep survey to check various things, and got the report back today.
The cover letter from my doctors office says they recommend not driving a vehicle or operating any equipment until my sleep apnea is treated. What?
Then in the actual report it says:
Primary reason for visit: sleep apnea with excessive daytime fatigue and sleepiness.
No, I never complained of daytime fatigue or sleepiness. In fact I specifically did NOT complain of such things. It wasn;t until the coments at the end that the sleep center noted that Patient "only came in...to see if he could stop using oxygen therapy."
I recalal the phone interview and then the interviews at the sleep clinic. The tech there REPEATEDLY asked me if I fell alseep during meetings or at movies. I said I did not, unless the movie sucked in whuch case you bet I'll take a nap. They asked if I ever found myself nodding off at traffic lights. Of course not. I told her several times that I did not fall alseep ever without intending to. Unless I give myself permission to take a nap, I am in no danger of falling asleep.
They claimed I said I did not feel refreshed when I wake up. I didn't say that, what I told them was I have never thought of sleeping as "refreshing." To me sleep is just restorative time. I have never in my life felt like leaping out of bed when I first wake up.
And yet, there it is.
Either they are willfully misreporting the facts, or they are simply not paying attention, more eager than anything to find a stereotypical slot in which to put my case and be done with it.
Apparently I do have some sleep apnea, all well and good for the study folks, but I have none of the symptoms they describe.
Oh and they report I sometimes wake up with a dry mouth. Really? WHo doesn't? Sometimes I go to bed thirsty too.
I did report to them I sometimes feel tired. I also reported to them I often only get 4-5 hours bed time, very rarely 8 or more, and during that time I have to arise to urinate 2-3 times due to BPH. I also reported that the phone sits next to me and I get several business calls per day during sleep time. All this was completely ignored. I'd have to say that is a major contributor to any daily fatigue.
They noted it took a little l.ong to fall asleep. Really? IN an unfamiliar bed, covered in wires and sensors, unable to lie in the bed where I wanted, but having to leave space for the sensing equipment lying next to me. Not ready to sleep? I normally go to bed 9-10AM, but they invited me in at - my choice - 7PM or 8PM. Then the tech called to say I could come in SUnday night at 2AM if that helped. I wonder how many of my doctors and staff could easily fall asleep and do so for 8 hours if they had to do so at noon. The reading I normally do at the end of my day was impossible, and she turned off the TV which normally keeps me company. The room as pitch dark and silent, leaving me to sit there in the dark staring at the dimly glowing inra-red lights over the camera. I don;t doubt it took a while.
DOn't operate a vehicle, my ass.
The cover letter from my doctors office says they recommend not driving a vehicle or operating any equipment until my sleep apnea is treated. What?
Then in the actual report it says:
Primary reason for visit: sleep apnea with excessive daytime fatigue and sleepiness.
No, I never complained of daytime fatigue or sleepiness. In fact I specifically did NOT complain of such things. It wasn;t until the coments at the end that the sleep center noted that Patient "only came in...to see if he could stop using oxygen therapy."
I recalal the phone interview and then the interviews at the sleep clinic. The tech there REPEATEDLY asked me if I fell alseep during meetings or at movies. I said I did not, unless the movie sucked in whuch case you bet I'll take a nap. They asked if I ever found myself nodding off at traffic lights. Of course not. I told her several times that I did not fall alseep ever without intending to. Unless I give myself permission to take a nap, I am in no danger of falling asleep.
They claimed I said I did not feel refreshed when I wake up. I didn't say that, what I told them was I have never thought of sleeping as "refreshing." To me sleep is just restorative time. I have never in my life felt like leaping out of bed when I first wake up.
And yet, there it is.
Either they are willfully misreporting the facts, or they are simply not paying attention, more eager than anything to find a stereotypical slot in which to put my case and be done with it.
Apparently I do have some sleep apnea, all well and good for the study folks, but I have none of the symptoms they describe.
Oh and they report I sometimes wake up with a dry mouth. Really? WHo doesn't? Sometimes I go to bed thirsty too.
I did report to them I sometimes feel tired. I also reported to them I often only get 4-5 hours bed time, very rarely 8 or more, and during that time I have to arise to urinate 2-3 times due to BPH. I also reported that the phone sits next to me and I get several business calls per day during sleep time. All this was completely ignored. I'd have to say that is a major contributor to any daily fatigue.
They noted it took a little l.ong to fall asleep. Really? IN an unfamiliar bed, covered in wires and sensors, unable to lie in the bed where I wanted, but having to leave space for the sensing equipment lying next to me. Not ready to sleep? I normally go to bed 9-10AM, but they invited me in at - my choice - 7PM or 8PM. Then the tech called to say I could come in SUnday night at 2AM if that helped. I wonder how many of my doctors and staff could easily fall asleep and do so for 8 hours if they had to do so at noon. The reading I normally do at the end of my day was impossible, and she turned off the TV which normally keeps me company. The room as pitch dark and silent, leaving me to sit there in the dark staring at the dimly glowing inra-red lights over the camera. I don;t doubt it took a while.
DOn't operate a vehicle, my ass.